Introduction

Seizure Disorder

Multiple Disability

Sensory Disability

Spina Bifida

Syndrome Disorders and Rare Conditions

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Spina Bifida is a physical disability that occurs very early in a newly conceived child’s development.  It takes several forms and has some other related conditions that must be considered.  The first four sites listed will give you a great deal of information about this condition.  As you prepare your notebook entries, if you want more information, the additional links give you plenty of good resources.

1. NICHCY - Spina Bifida fact sheet  As with all of the fact sheets, this one provides a very concise summary of the basic facts about this condition.  http://www.nichcy.org/pubs/factshe/fs12txt.htm
2. The website of SBH of Queensland, Australia provides an easy to understand, well illustrated guide to Spina Bifida and related conditions at   http://www.spinabifida.org/Spina%20Bifida.htm  The 14 pages on this site provide a very complete overview of this condition.  Reviewing it will build on the basic concepts introduced in the NICHCY website. 
3. Spina Bifida Association of America This is the home page of the Spina Bifida Association of America, the leading national organization concerned primarily with this condition. http://www.sbaa.org/
4. Living With Spina Bifida a family's story.  This mother summarizes the events around her daughter’s birth and then provides a chronology of events over her 18 months of life.   All of the links on the homepage present interesting and informative material.  http://www.livingwithsb.com/ourfamily.html

Additional Information

• Spina Bifida Association of America - Facts About Spina Bifida  The national organization’s effort to provide its members and the public with accurate and up to date information. http://www.sbaa.org/html/sbaa_facts.html 
• Association for Spina Bifida and Hydrocephalus - Information Pages
  This is the British association for people with spina bifida and their families.  It also has a well illustrated information section....http://www.asbah.org 
• Family Village: Spina Bifida Site  Like all of the links to this group, this one provides medical information, a list of contacts, mailing lists and a selection of related links at http://www.familyvillage.wisc.edu/lib_spin.htm.
• Children with Spina Bifida: A Resource Page for Parents & Professionals
  A resource page for parents of children with spina bifida and health professionals. http://www.waisman.wisc.edu/~rowley/sb-kids/index.htmlx

The stories of other people with spina bifida and their families

• Susete's Home Page  Susete Callahan’s story about the birth of her son with Spina Bifida.
• Meet Julia.  A site created by her mother who says, “She was born with Hydrocephalus and Spina Bifida. To us, she's perfect and a miracle. I created "Julia's Journey" to share our story about having a child born with a serious birth defect called Spina Bifida and a condition called Hydrocephalus”.  http://www.juliasjourney.com    This site also has  Links to Other SB Families. Some very interesting stories, but about half of the links are no longer active.